top of page
56506548_1058329684353103_74730298928634

FA Community

The FA community is something truly special. For 5 years I couldn't even think about my diagnosis. I did not feel capable of handling this, but that all changed when I slowly started integrating myself with others who knew what I was going through.

​

There is a special bond between individuals who walk the same path as you. 

​

It is a sense of belonging and acceptance that everyone should have the ability to experience. And when you have a disability, having the ability to do, feel, and experience something is just magical. 

​

​

FA community: About
56444245_1058330031019735_45170447690875
50969860_1011811209004951_90169501146981
29572835_810351215817619_558054455510290
44091319_953736694812403_254219506810250
65593091_1118191371700267_10197974041294
29512297_810351712484236_270028195211090
44111031_953736138145792_937915635042615
117538723_1446872042165530_8501175512671870407_n.jpeg
120302452_1488453404674060_2161261220088466279_n.jpeg
123724767_1525348754317858_7349235663417290381_n.jpeg
122231296_1509711195881614_8046624391084253018_n.jpeg
119852060_1481847698667964_4444396071741964714_n.jpg
171930159_1635293563323376_5471379664688243313_n.jpg
200052870_1681056142080451_4914771451484920363_n.jpg
189681034_1664826890370043_7406373704291945552_n.jpg
FA community: Portfolio

patient registry

FA effects about 15,000 people in the entire world. Talk about rare! If you or someone you know has FA please register. It allows you to receive updates on clinical trial and drug trial opportunities as well as keeps you in the loop with FA news.

FA community: Text
bottom of page